Head of Patient Advocacy, Global Rare Diseases

Chiesi USA

Based in Parma, Italy, Chiesi is an international research-focused biopharmaceutical group with 90 years' experience, operating in 31 countries. More than 7,000 employees across the group are united by a singular purpose : promoting a healthier world for our people, patients, and the planet. This is what drives us as we research, develop, and market innovative drugs across our main therapeutic areas. Discover more here.

At Chiesi we are thinking generations ahead, driving sustainable innovation with purpose. This fosters a culture of reliability, transparency, and ethical behaviour at every level. As a Benefit Corporation and a certified B Corp, we have embedded sustainability in our bylaws and continuously measure our impact.

Diversity, inclusion, and equal opportunity are at the heart of who we are. We believe our differences make us stronger. We are a vibrant ecosystem of passionate, talented individuals united by strong values, each bringing unique perspectives that help us to continuously challenge the status quo for the better.

Who we are looking for

Purpose

Chiesi is looking for a creative, highly motivated, and compassionate leader who is interested in making a positive impact on the lives of people living with rare diseases in the position of Global Portfolio Head Patient Advocacy, in the Rare Disease business unit.

This position works in close collaboration with, and reports to, the VP Global Patient Advocacy and is part of the Advocacy Leadership Team. This individual leads the company's efforts in building meaningful, impactful, and mutually productive partnerships with patient community organizations in one of Chiesi's strategic rare disease indication portfolios. We are looking for someone who will drive the development and execution of a comprehensive patient advocacy strategy that will ensure community insights are reflected in Chiesi's decision-making processes. The Global Portfolio Head will provide strategic leadership, mentorship, and operational oversight, ensuring the patient voice is integrated into all areas of the organization, while also overseeing the functional structure and development of a high-performing Patient Advocacy team.

Main Responsibilities

• Develop and implement a coordinated global patient advocacy strategy for one of Chiesi's key rare disease indication portfolios, aligning with corporate goals and priorities with support from the VP, Patient Advocacy.
• Serve as an organizational expert on patient advocacy, providing insights, best practices, and guidance across teams within the strategic therapeutic area of responsibility.
• Enhance the integration and impact of the rare disease Patient Advocacy function.
• Build and lead a high-performing Patient Advocacy portfolio team, fostering a culture of collaboration, innovation, and patient-centered thinking.
• Identify and implement operational improvements to enhance the team's efficiency, effectiveness, and engagement with internal and external stakeholders.
• Establish and maintain key relationships with advocacy organizations to drive initiatives for collaboration and education. Share information on company activities and interests with advocacy organizations as appropriate.
• Develop and manage an annual budget for the Advocacy function within the strategic portfolio. Establish clear goals, metrics, and performance standards for the Patient Advocacy team, ensuring alignment with company priorities and industry standards.
• Provide mentorship, guidance, and professional development opportunities for team members to expand their expertise and impact.
• Represent the Advocacy function on key cross-functional portfolio leadership teams.

Experience Required

What we offer

No matter where your path starts at Chiesi, it leads to inspiring possibilities. Your future is our focus, and we are committed to nurturing your development in our dynamic, friendly environment with access to resources and training every step of the way.

We provide top-class benefits, including comprehensive healthcare programs, work-life balance initiatives, and robust relocation support. Our salary package is competitive, comprising a basic salary, performance bonuses, and benefits benchmarked against the external market. Additionally, we offer flexible working arrangements, remote work options, and tax assistance services for foreign colleagues, all designed to help you thrive.

Chiesi USA is an equal opportunity employer committed to hiring a diverse work force at all levels of our business. All qualified applicants receive consideration for employment without regard to race, national origin, age, sex, religion, disability, marital status, veteran status, or any other basis protected by local, state or federal law. This policy applies with regard to all aspects of one's employment, including hiring, transfer, promotion, compensation, eligibility for benefits and termination.