Executive Director

The Cystic Fibrosis Foundation is a leading healthcare nonprofit organization like no other. For decades, we have been taking major steps and pioneering new ways to advance the mission to find a cure for cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the CF community, and advancing high-quality, specialized care.

We are the global leader in the search for a cure for cystic fibrosis and nearly every CF drug and therapy available today was made possible because of CF Foundation support.

We did this not only for the close to 40,000 people living in the U.S. with CF - and the estimated 105,000 people worldwide - but for the people with CF and families who have worked tirelessly to support the mission.

These achievements have required dedication and unwavering commitment from a talented team of CF Foundation employees. We promote an environment that attracts and retains a diverse group of talented people who are passionate about eradicating this disease .

Join us and you will join an amazing team, devoted to our community, and our mission.

Position Description

The Cystic Fibrosis Foundation (CF Foundation) and its employees embrace their commitment to its core values. These core values are the pillars on which the CF Foundation stand and will continue to sustain us as we move forward.

Keep sight of what really matters : Our decisions are based on what is best for people with cystic fibrosis and their families.

Aspire for excellence in all we do : We take pride in our work. We are committed to continuous learning and improvement.

Stronger together : We collaborate and work together so that we can learn more and achieve more.

Innovate with courage : We embrace challenges. We reach beyond boundaries in pursuit of our vision.

Care about our people : We deeply care about each other and all who support our shared mission. We listen with respect. We support one another.

We are a nonprofit, donor-supported organization that has raised and invested billions of dollars to help develop cystic fibrosis therapies that have changed the lives of people with this disease.

Nearly every CF medicine available today was made possible because of Foundation support.

POSITION SUMMARY :

The Executive Director provides leadership and direction for their chapter by facilitating collaboration, communication, staff and volunteer development, and support within the chapter to further the organization's overall goals.

The Executive Director ensures that CF families, people with CF, medical professionals, and caregivers are provided with up-to-date information on CF Foundation programs, research progress, access to healthcare, relevant legislative issues on both a local and national level, HIPAA safeguards, and the compliance with infection control and the code of ethics.

The Executive Director will work closely with the Area Director to implement the chapter's strategic and annual revenue and fundraising plans to ensure the successful achievement of the chapter's financial goals and growth.

ESSENTIAL DUTIES AND RESPONSIBILITIES :

Works closely and collaboratively with Area Director or Senior Director, Field Management (SDFM) to oversee the development of revenue and annual goals and operational budgets.

Responsible for or assists in the achievement of chapter revenue.

Directs fundraising as determined by the Area Director. May directly manage a priority or signature chapter event and / or campaign.

Supervise development staff in the successful implementation of events within assigned campaigns.

Ensures overall profitability and productivity of chapter or branch office.

Networks effectively with CF families, volunteers, donors, and other community members. Aids in the managing and stewarding of care center relationships.

Plays leadership role in development of individual giving within the market. Identifies, cultivates, solicits, and stewards major gift donors and annual fund donors.

Helps ensure effective chapter operations including administrative systems and record keeping that are aligned with financial and accounting policies.

Investigates market potential, recommends, and implement short and long-term goals.

Accountable for providing strategic direction and guidance to staff and volunteers on fundraising campaigns, national priorities, and programming initiatives.

Actively supports the Foundation's equity, racial justice, diversity, and inclusion efforts.

Responsible for overall development and management of staff and volunteers in fundraising, event, and program execution for the chapter.

Utilizes effective management techniques in the selection, supervision, monitoring, evaluation, and training of staff to achieve organizational objectives and provides management expertise, coaching, and mentoring.

Responsible for leading, directing, and implementing the chapter's revenue goals and operational budget based on market potential, including the execution of fundraising campaigns.

Responsible for recruiting, cultivating, and nurturing corporate sponsors, board members, volunteers, community members, and donors in the chapter for continued volunteer and leadership and revenue growth.

Responsible for engaging volunteers, sponsors, donors, and families in fundraising and steward relationships to ensure a continuous leadership and revenue pipeline.

Fosters innovation in launching new programs, increasing volunteer engagement, executing revenue generation, and provides leadership for change management throughout the chapter, including virtual and hybrid programs and event engagement opportunities.

Remains knowledgeable about market potential and recommends and implements short and long-term goals to effectively lead assigned chapters in partnership with the Individual Giving Officer, SDFM, and Area Director to maximize individual giving efforts.

Effectively resolves all chapter issues with staff, volunteers, and donors in partnership with the Area Director and HR Business Partner.

Ensures effective chapter operations, including administrative systems and record-keeping involving audits, working closely with administrative staff, and the Field Operations Manager.

Ensures that education about CFF programs and initiatives for volunteers, donors, prospective volunteers, and other community members is ongoing and current.

Ensures people with CF and families are informed about Community Voice, COMPASS, care centers, cff.org, and other key resources.

Fosters a culture of advocacy by developing a local advocacy action plan in cooperation with the Area Director, advocacy department staff, and regional advocacy staff.

Secure key advocates and committee members to act on issues that affect people with CF.

Communicates and ensures adherence to CFF infection prevention and control policies and legislative issues through a volunteer network, e-communication, social media, and at CFF programs and events.

KNOWLEDGE, SKILLS AND ABILITIES REQUIRED :

Four-year college degree required or equivalent combination of education, skills, and experience.

Minimum of 10 years of related nonprofit experience and five years of staff management / supervisory or leadership experience, including prior experience coaching, supervising, directing, and developing staff.

Strong interpersonal skills (verbal and written), embraces diversity, and models the values of the Foundation.

Special event fundraising and individual giving experience, including securing large gifts from major donors and corporate sponsors, proven sales results, and strong stewardship experience.

Ability to multi-task, prioritize and keep organized to ensure timely and accurate work.

Ability to prepare budgets, projections, and reports.

Proficient in Microsoft Office suite, ClearView, BI Reporting, Zoom, and Workday.

Strong professional ethics, which include approaching others tactfully.

REPORTING RELATIONSHIPS :

Reports to the Area Director.Manages direct reports.

WORKING CONDITIONS :

Normal office environment with little exposure to excessive noise, dust, and temperature.

Work nights and weekends as necessary to attend meetings and events.

Must have access to reliable transportation and ability to travel to meetings or events at different locations.

Use of computer required.

Some heavy lifting may be required.

The above is intended to describe the general content of and requirements for the performance of this job. It is not to be construed as an exhaustive statement of essential functions, responsibilities, or requirements.

This position will be posted for a minimum of 5 days or until the position is filled. Applications will be accepted on an ongoing basis, so candidates are encouraged to apply promptly if interested.

Total Rewards : The CF Foundation is committed to offering competitive compensation (base pay and incentive), benefits, and professional development opportunities that maximize our ability to recruit, retain, reward, and motivate a highly-qualified and diverse workforce.

• Our comprehensive benefits package includes medical, dental, and vision coverage; generous time-off and leave policies; a holistic well-being program;
• health savings and flexible spending accounts; employer-provided life and disability insurance; retirement savings benefits;

and a variety of work-life benefits to support employees and their family members.

The CF Foundation is an equal opportunity employer that is committed to being an employer of choice, not just a good place to work, but a great and inclusive place to work.

We strive to recruit and maintain a diverse workforce. Qualified applicants will receive consideration for employment without regard to race, physical or mental disability, color, religious creed, ancestry, national origin, religion, age, sex, marital status, genetic information or testing, gender identity and expression, sexual orientation or status as a Vietnam-era or special disabled veteran or any characteristic protected by law.

Reasonable Accommodations : The CF Foundation is committed to providing reasonable accommodations for qualified individuals with disabilities in our job application procedures.

If you need assistance or would like to request an accommodation due to a disability, please contact us at [email protected].